Two years ago next month Mclayne started having seizures. They are not the typical seizure. His mouth goes numb, and then the right side of his face twitches for 10-15 seconds and he drools and then slowly the sensation returns and he is able to talk again. The entire time this "episode" occurs he is conscious he can let me know he is having one he can stand, walk, respond to questions and we have been carefully documenting each one.
In June of 2007 he had a CAT Scan and MRI and an EEG. The neurologist at Primary Children's diagnosed him with Epileptic Simple Partial Seizure disorder. So these "episodes" occur every 4-6 months and he will have 4-6 over a week and then he will go 4-6 months without having any more.
Last week he was talking to me and his right eye was blinking really fast while his left eye remained normal. I called the neurologist at Primary's to find out what he thought we should do. In the meantime I did some research and they possibilities I discovered were Simple Partial Seizures (weird) or Tourettes Syndrome.
The Dr called me back on Monday and they wanted to see him immediately. So Mclayne and I spent the afternoon at Primary's on Tuesday. He had a sleep deprived EEG, and then we met with the dr who told us that this new EEG looked better than the last one and he is pretty sure it is a seizure thing and not Tourettes because he can't replicate the motion and usually tics can be replicated.
I realize this post is really long and your retinas are bleeding but I really wanted to document this stuff for posterity of course.
The dr is ok with him playing football which made Mclayne really happy (and me too).
Mclayne is such a good kid and I really enjoyed spending the afternoon with him. He is really funny (I wonder where he gets that? ) and I am so so grateful that the Dr had good news for us in the sense that things are looking better instead of worse.
Next trip to Primary's is scheduled for June when Chandler will get his yearly EKG.
